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EXCERPT FROM THE BOOK

"It Gets Dark Sometimes:  My Sister's Fight to Live and Save Lives"
by Jeffrey Marx

color_2.jpg (40864 bytes)She is everything in the world to me:  my little sister, only sister, and best friend, all wrapped up in one -- and now she is unreachable.  She is right here before my eyes, yet so far gone, in a deep coma, hours from death.  Her brain is swollen and damaged, her arms and legs lifeless.  A machine is breathing for her, pumping air in and out of her chest, and doctors are performing tests to see if even a sliver of hope remains.  It does.  But time is running out.

This is entirely unbelievable and absolutely overwhelming, the type of thing you hear about from time to time, but always happening to someone else, not you and your family.  Wendy is only twenty-two years old.  She has always been so healthy, and this has been so sudden.  There has been no time to prepare.  Then again, how would you prepare for this?

Before now, my only images of a coma have been supplied by a newspaper article here, a movie scene there.  So vague and so scary.   "Vegetable" is the term that keeps popping into my head, no matter   how many times I force it back out.  Even if Wendy is able to hold on -- and that alone would take a miracle -- is she destined to be a vegetable?  How long will the life-support machines stay on?  And who will decide?

None of this makes any sense, even as I stand next to Wendy's bed in the intensive-care unit, slowly caressing her hands and arms, staring at her, speaking softly, begging her not to give up.  Not yet.   Not ever.  "We're not gonna leave you, Wen.  We're right here with you."  My parents and brother are also here, and we're all equally consumed, struggling in our own ways, parts of ourselves being destroyed with each tick of the clock.

"Hang in there, Wen."   I'm just able to get that out.  "I love you."  Each word requires tremendous effort.  "Keep fighting, Kid."

Wendy has been off on her own for a few years now, and has accomplished so much in so little time, but to me, she is still "Kid," as in kid sister.  Always has been, always will be.

I hold my head in my hands, and I pray for Wendy.  I ask for the biggest favor in the world -- and promise I'll never again ask for small favors.  Still, despite all of our prayers and despite all the medical technology in this hospital, I have accepted the realization that there is only one way Wendy will have a chance to survive.  I am not one to wish harm upon another human being, and certainly not one to wish death, so this troubles me deeply.  But Wendy means too much to me, and I know exactly what she needs to start fighting for a comeback.

The thought will not vanish:  For Wendy to live, the right person has to die.

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